In October 2013 my wife, Sarah Marshall, was diagnosed with Idiopathic Pulmonary Hypertension. It is a massively serious disease that has utterly changed our lives beyond all recognition. Two years previously we had walked for days through gorges, mountain ridges and glaciers in New Zealand and China. After 2 weeks in hospital, we were chuffed that Sarah managed to walk 23 metres in a function test.
Fortunately Sarah is making progress and with 3 months of aggressive drug treatment she can manage 200 metres.
The doctors are unwilling to give any prognosis, but estimates for life expentancy for her condition range from 2 to 10 years. For some people their life expectancy can be increased by having a heart and/or lung transplant. However many people, whether with PH or other conditions, die whilst waiting for a donor. Only 30% of the UK’s population are on the Donor Register.
To raise awareness of the Organ Donor Register and to encourage people to join, I will be taking part in a series of challenges in 2014.
The aim of this website to to encourage as many people as possible to join the register and talk about it with their friends and loved ones. Whether you have already joined or not, please click here to take our pledge.