Please click here to take our pledge.

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In October 2013 my wife, Sarah Marshall, was diagnosed with Idiopathic Pulmonary Hypertension.  It is a massively serious disease that has utterly changed our lives beyond all recognition.  Two years previously we had walked for days through gorges, mountain ridges and glaciers in New Zealand and China.  After 2 weeks in hospital, we were chuffed that Sarah managed to walk 23 metres in a function test.

Fortunately Sarah is making progress and with 3 months of aggressive drug treatment she can manage 200 metres.

The doctors are unwilling to give any prognosis, but estimates for life expentancy for her condition range from 2 to 10 years.  For some people their life expectancy can be increased by having a heart and/or lung transplant.  However many people, whether with PH or other conditions, die whilst waiting for a donor.  Only 30% of the UK’s population are on the  Donor Register.

To raise awareness of the Organ Donor Register and to encourage people to join, I will be taking part in a series of challenges in 2014.

The aim of this website to to encourage as many people as possible to join the register and talk about it with their friends and loved ones.  Whether you have already joined or not, please click here to take our pledge.

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15 thoughts on “

    • Thanks Andrew.
      Don’t forget to take the pledge as well! If you are already on the register, you can reaffirm your decision.

  1. This is a great thing to do – I am already registered as an organ donor. I have shared your page to continue to raise awareness for you. Xxx

    • Thanks Libby,
      You can take the pledge even if you have already registered as a donor. It is important to keep your information up to date with the register and to talk about it with your family.

  2. Hi Sarah & Phil,
    Like Rachel, I too am already on the donor list and have been for many years. Keep up the fight Sarah!

    • Thanks Jean,
      You can take the pledge even if you have already registered as a donor. It is important to keep your information up to date with the register and to talk about it with your family.

  3. Hi Phil and Sarah

    I found your page through my mum’s facebook share. I’ve taken the the pledge and will share your page on fb with my friends.

    Lots of luck with the challenges Phil and I hope Sarah continues to go from strength to strength.

    Love from Rebecca

  4. I joined the register when Sarah was diagnosed…it was the only right thing to do..would do anything to ensure the beautiful cousin of mine lives a long and happy life x

  5. Hi Sarah,

    I’m already an organ donor and have had 2 liver transplants already due to a rare liver disease I was born with. I was diagnosed with PH last year too and have just started treatment but was told I may need another transplant in the future.

    Good luck with everything.

  6. hi Sarah and phil
    I am an CCU nurse and I have myself and my family on the register. The heart is precious organ, and a wonderful gift to someone who needs it. Good luck with challenge and the fight

  7. Hi Sarah and Phil
    I’ve signed up to the register. Hope Sarah keeps getting better
    Andrea
    She is in our prays, all our love.
    Antonia and Emilia xx (Fritwell School)

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